Category Archives: rare disorder

#HAWMC #Health Focus;  “Challenges & Victories” by Janice Tindle 

Posted on November 28, 2016 by janicetindle.com

The WEGOHEALTH Activist 30-Day Writing Challenge,Day 28 “5 Challenges & 5 Small Victories. Make a list of the 5 most difficult parts of your health focus. Make another top 5 list for the little, good things (small victories) that keep you going.” … Continue reading →

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#HAWMC ” #TipTuesday is #Giving like a wee #philanthropist  by Janice Tindle 

Posted on November 22, 2016 by janicetindle.com

The WEGOHEALTH Activist 39 Day Writing Challenge, Day 22 “Tip Tuesday! Have you mastered the hashtag? Figured out the Instagram algorithm? Or maybe you have a few tips to increase your blog followers. Whatever it is, share your expertise with … Continue reading →

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#HAWMC  ” Please Leave The Area Immediately!”  by Janice Tindle 

Posted on November 20, 2016 by janicetindle.com

The WEGOHEALTH Activist 30 Day Writing Challenge Day 19  “Everyone has tough days, but how do you pull yourself out of the rut? Maybe you blog, repeat affirmations or listen to a favorite playlist. Write about what tools, tips or practices you … Continue reading →

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#HAWMC  ” I hope you feel better!”   by Janice Tindle 

Posted on November 19, 2016 by janicetindle.com

The WEGOHEALTH Activist 30 Day Writing Challenge Day 18 ”  What’s a health cliché that really bugs you? What are you tired of people asking you or saying to you again and again? Write it down. Then reclaim it! Take … Continue reading →

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Dear Yahoo, This may sound silly, but…by Janice Tindle 

Posted on November 11, 2016 by janicetindle.com

The WEGOHEALTH Activist 30-Day Writing Challenge Day Day  10 “Yahoo Answers Post – Pretend you are writing a question about your condition – it can be as silly or humorous as you want. Now answer it. (Remember: Your answer can … Continue reading →

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#HAWAC “I think I can…I think I can…Getting in touch with my inner Little Engine.” by Janice Tindle 

Posted on November 8, 2016 by janicetindle.com

The WEGOHEALTH Activist 30-Day Writing Challenge Day 8  ” Little Engine Post. Write a list post with 10-15 lines that start each with “I think I can…” Write 5 lines at the end that start with “I know I can.” … Continue reading →

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HAWMC “Why I became an advocate for brain injury and dystonia.”  By Janice Tindle 

Posted on November 7, 2016 by janicetindle.com

The WEGOHEALTH Activist 30 Day Writing Challenge Day 7 “Was starting your advocacy journey a hard decision? Were you anxious and hesitant or were you excited and ready to share your story? Tell us how you chose to start advocating … Continue reading →

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#HAWMC  Dear Janice,  by Janice  Tindle 

Posted on November 4, 2016 by janicetindle.com

The WEGOHEALTH Activist 30 Day Writing Challenge Day 4  “Do you remember the day you were diagnosed? Perhaps you were scared, felt alone and surely you had tons of questions. Write a letter to yourself for the day you were … Continue reading →

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#HAWMC WEGOHEALTH Activist Writing Challenge Day 3 by Janice Tindle 

Posted on November 4, 2016 by janicetindle.com

The WEGOHEALTH Activist Writing Challenge Day 3  “Quotation Inspiration. Find a quote that inspires you (either positively or negatively) and free write about it for 15 minutes.” This is easy. ” I never give up.” – Janice Tindle  For me, … Continue reading →

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Dear Lord, Please Grant Me Patience      by Janice Tindle

Posted on October 16, 2016 by janicetindle.com

Please grant me patience to deal with my brain, Because the world goes by like a loud freight train. Please grant me patience to deal with my heart, Because I can never seem to finish the projects that I start. … Continue reading →

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It’s time to endorse this blog for the WEGO HEALTH Awards! 

Posted on September 29, 2016 by janicetindle.com

It’s true, it is an honor to be nominated. Now, is the time to endorse your favorite nominees! I’m so glad that this blog has received a nomination! Thank you very much! I’m humbled and grateful for the acknowledgement. Click … Continue reading →

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This Blog just received a WEGO Nomination! 

Posted on August 2, 2016 by janicetindle.com

This blog was nominated for Best In Show: Blog! Whoo Hoo! It IS an honor to be nominated! Thank you! Here’s the description:  “Whose blog do you absolutely love? Their writing is exceptional, their “voice” admirable, and their writing is … Continue reading →

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Goodbye 2015    by Janice Tindle

Posted on December 31, 2015 by janicetindle.com

As I enter into 2016, I do so with great determination, staking my claim on hope.   It took five long years of hard work and great courage to meet the challenges of the devastating effects of a misdiagnosis and … Continue reading →

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The Invisible Imprisonment    by Janice Tindle 

Posted on September 30, 2015 by janicetindle.com

I lie in my bed, I can not feel it’s comfort. The iron bands, tightly wrap my forearms, My hands feel the head of the hammer. “Just lie still and remain calm.” “Breathe.” The reign of pain is on the … Continue reading →

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Daniella: Dystonia’s Warrior Princess                                     by Janice Tindle

Posted on August 26, 2015 by janicetindle.com

   They called her Princess. From the moment she was born, there was no denying the resemblance little Daniella had to older brother Lukas Bredahl and her beautiful mother, Pia Bredahl of Vejle, Demark. She laughed. She sparkled. She shined. … Continue reading →

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A Message For Those Who Have A Life Changing Disability   by Janice Tindle

Posted on August 24, 2015 by janicetindle.com

“I don’t think I’ll ever be happy again,” is the worst thing you can say to yourself. You WILL be happy again. Tell yourself that. You will. I promise. Maybe not all day long, but you’ll have moments. Everyday, do … Continue reading →

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To Be Still                             by Janice Tindle 

Posted on August 19, 2015 by janicetindle.com

Oh! To be still- To lay down and not feel the war within, The muscles, like revving engines,  Raring to go, ramping, ramping, and off!  Off into a race to nowhere.  The twists and turns, the dangerous road of pharma,  … Continue reading →

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Dystonic Disaster          by Janice Tindle

Posted on August 17, 2015 by janicetindle.com

Spasm rocks the chair That hits the wall That knocks down the picture  That hits the table That shatters the glass  That flips the coffee cup That crashes to the floor That stains the carpet In the house that Jack … Continue reading →

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