The WEGOHEALTH Activist 30-Day Writing Challenge,Day 28

“5 Challenges & 5 Small Victories. Make a list of the 5 most difficult parts of your health focus. Make another top 5 list for the little, good things (small
victories) that keep you going.”

Challenges:🤔

🤔” The spirit of course, is eager, but the flesh is weak.”- Mark 14:38.

I can not physically do the things I want to do. That’s very frustrating. With dystonia, the more you move, the more your nerves twist your muscles. It’s like being “wrung out” continually. The pain is nonstop, and yet, we endure. 

🤔Being understood instead of judged. Stress makes any neurological disorder worse. If I spasm as a result of stress, it doesn’t mean that my condition is psychological. It means I’m having a neurologal response to stress. 

🤔Getting help and support in all areas of my life. If I had a personal assistant everyday, I could accomplish my goals. 

🤔Having both visible and invisible conditions, none of which is curable or easy to manage. It’s very hard to try to keep yourself as healthy as possible when your body is going in the opposite direction. It’s a battle. I’m very high maintenance. 

🤔Being depressed or having anxiety about having chronic pain is a symptom and not the same as having an actual mental illness. Why is this so hard to understand? 

Victories: 😊

😊I’m still here, fighting. I’m currently using neuroplasticity to manage my health and it’s working. Ups and downs, ebbs and flows, but always moving forward. 

😊Becoming an internationally published writer. Writing has been such a stabilizing factor for me. It’s builds self esteem and confidence. 

😊Having people tell me that through my words and example that I’ve helped them accept their disability, moved them, changed their opinion, thinking or response towards the disabled, inspired them, and that they were able share my words with others to help them understand what they are going through. Having people tell me, “you write want I feel.” 

😊I helped get a disabled parking space in front of my doctors office by contacting the city each time I got there and a non disabled person was parked in the spot. I sent them pictures of me and the car in the space.  

😊Reported two spam websites who stole my article and made themselves the author of , ” 7 Ways To Support A Loved One With A Traumatic Brain Injury” for copyright infringement and violations, to remove it. They were later closed down. 

😊Having the courage and self love to walk away from toxic people and unhealthy situations ( like leaving Facebook at the end of the year.) Although a lot of the above victories happened because of Facebook, a lot more challenging circumstances happened that created problems for me. I believe that my health focus is stronger without Facebook being a daily focus in my life.

(I bought this painting recently. I intend to use it to help me with my visualization therapy. )